The University of Michigan's Genetics department has recently teamed up with the Ehlers-Danlos National Foundation to create a 'comprehensive Hypermobility database.' To that affect, the University of Michigan is conducting a survey of Hypermobile patients now through March which focuses on 'their full range of symptoms, treatment efficacies, and experiences with the healthcare community.' This information is absolutely vital, as much of the scepticsm of the healthcare community towards HMS stems from a lack of sufficient data about how HMS impacts a patient's daily quality of life. The information collected in this survey will help to serve future generations of HMS patients, so please take the time to help out.
Anyone with EDS type III/HEDS/HMS/BJHS is welcome to take the survey (you do NOT have to be a member of the EDNF), and please encourage your hypermobile friends and familymembers to participate as well. Under the 'diagnosis' column please select 'other' and then enter 'Hypermobility Hope' if this website has helped you find answers to your diagnostic questions, it will be much appreciated!
The survey can be found here and takes about 45 mintues: http://www.ednf.org/index.php?option=com_content&task=view&id=1862&Itemid=88889153
